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Agenesis of the Corpus Callosum
Agenesis of the Corpus Callosum ACCKIDS
| Home | GLOSSARY OF RELATED TERMS | Letter to new ACC families | Agenesis of the Corpus Callosum | WEBRING | Read our stories-Morgan | Read our stories-Katera | Read our stories-Billy

ACC...Agenesis of the Corpus Callosum..a natural split brain? Interesting I have witnessed..I have seen a child with ACC use both hands simultaneously to color .The right hand drew on the right side of the paper while the left performed the same task at the same time.Needless to say it was bizarre at best to watch.It made me realize the brain CAN function within itself.

Agenesis of the Corpus Callosum by medical definition:According to NORD:Agenesis of Corpus Callosum (ACC) is a rare disorder that is present at birth (congenital). It is characterized by a partial or complete absence (agenesis) of an area of the brain that connects the two cerebral hemispheres. This part of the brain is normally composed of transverse fibers. Agenesis of Corpus Callosum is usually inherited as either an autosomal recessive trait or an X-linked dominant trait. It can also be caused by an infection during the twelfth to the twenty-second week of pregnancy (intrauterine) leading to developmental disturbance of the fetal brain. In some cases mental retardation may result, but in other cases, no evident symptoms may appear and intelligence may not be impaired.

ACC is diagnosed in approximately ninety percent of patients during the first two years of life. An epileptic seizure is usually the initial symptom indicating that a child should be tested for a brain dysfunction. The disorder can also be without apparent symptoms in the mildest cases for many years.

The above information while medically accurate means so many different things to many of us.ACCKIDS are in a class of their own. As many of us have learned nothing is set in stone.The best source of information has come from parents and caregivers of ACCKIDS.ACCKIDS are not textbook, while there may be medical guidelines, ACCKIDS often follow their own course.It is important to relay to the medical professional as much ACCURATE information we as parents/caregivers can garner so they may LEARN how each individual ACCKID works. I have found that keeping ALL of my child`s medical record`s(medical reports, lab tests, growth charts, etc) in a binder has been invaluable.  
It is my hope as a parent to one day have the medical profession completely versed on ACC. It is only through the hardwork of many ACC parents and caregivers this is possible.